Care Strategies
Brain Tumor Care Strategies
In partnership with the Association of Oncology Social Work, we have developed an interactive tool highlighting symptoms and strategies associated with brain cancer diagnosis and treatment.
Common Symptoms
Irritability or mood swings, headaches, weakness, seizures. Difficulty speaking or understanding.
At diagnosis: shock, racing thoughts, fear, sadness, and worry about the future.
Helpful Strategies
- Ask a social worker for help.
- Keep a timeline of symptoms.
- Care for yourself first.
- Establish boundaries early.
- Use credible sources only.
Strategies to Avoid
- Hiding news from children.
- Social media medical info.
- Defining them by illness.
- Overwhelming with info.
Common Symptoms
New changes in behavior or thinking. Headaches. Seizures. Muscle weakness. Confusion, or feeling less alert.
Helpful Strategies
- Advance care planning.
- Create strict daily routines.
- Palliative care consultation.
- Refer to neuropsychologist.
Strategies to Avoid
- Ignoring cognitive limits.
- Arguing with confusion.
- Overlooking preferences.
Focus & Comfort
Focus on what is in your control. Give favorite pictures, clothes, or music. Say yes to help from others.
Helpful Strategies
- Use legacy building tools.
- Remind them of their worth.
- Keep talking even if silent.
- Join a specific support group.
Strategies to Avoid
- Avoiding talk of death.
- Forcing food or water.
- Isolating yourself.
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